Nagpur: Sickle cell disease (SCD) was contained from the Disability Bill 2017, although not many patients with SCD will in fact have the ability to receive handicap certificate as it’s extremely tricky to fulfill the criteria.
“The standards necessary to issue handicap certification for sickle cell disease ought to be shifted,” explained Dr Vinky Rughwani, manager of Thalassemia and Sickle Cell Center Nagpur.
Together with sickle cell patients, Dr Rughwani predicted on district collector Ravindra Thakre on Friday and handed over a memorandum of needs.
“Sickle Cell patients need to take hydroxyurea frequently.
This medication ought to be made accessible rural hospitals and primary health centers.
The are receiving just Rs1,000 from several years below the Sanjay Gandhi Niradhar Yojana.
This amount also needs to be raised,” Dr Rughwani stated.
Sickle cell patients are almost always prone to disease.
Priority ought to be given to them giving Covid vaccination.
If husband and wife have sickle cell trait, then the expectant spouse wants CVS napping to prevent arrival of SCD kid.
This facility ought to be made available in government agencies.
“We need our requirements to attain the sections concerned whenever possible.
This will aid the destitute sickle cell patients a whole lot,” he further added.
The Indian Medical Association (IMA) has also endorsed the requirements of sickle cell patients.
Thakre said the issues being confronted by sickle cell patients could be solved at the first and they’d be redressed by the divisions concerned.
Soumya Raut, Pritesh Sondawale, Riyansh Bagde, Soumya Godbole, Akhilesh Jharia and other psychiatric sufferers together with their parents were present.