Kochi: In the six days of a village in Kannur campaigned and raised the 18-crore RS needed for the treatment of one and a half-year-old child who was diagnosed with a very rare (high school)-muscular atrophy as a contribution of the type of heart coming flowing from all of Kerala and at the whole world.
The fate of Mohammed, son of P K Rafeeq and Mariyumma from Mattool, was revealed after his sister, Afrah, 15, who has also been diagnosed with the same genetic disorder, making attraction moving on social media to help his brother.
Afrah was not diagnosed in the early stages and he was now a wheelchair bound.
A committee formed under Mattool Grama Panchayat has coordinated the campaign efforts taken over by social media for the past few days.
President Panchayat Mattool Farisha Abid said on Monday that they had received the required amount and urged sympathizers well to stop contributions.
“We can collect money to save the child’s life.
No need for further contributions to this account set for this purpose.
We thank all the hearts that contribute to saving their lives,” Farisha said, who also pioneered the committee formed for care.
The child was diagnosed with type 3 high school, rare genetic disease that weakened the muscles and led to the difficulty of walking, after childhood.
Children must be given genetic therapy drugs used to treat high school before reaching age 2.
The cost of maintenance is very high because the drug is very expensive for this rare condition.
“There are certain obstacles to bring drugs.
MP and MLA have been contacted for further action,” Farisha said.
RS 18 CR in 6 days: the world unites to save Kannur Kid
